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Ali's Gaitors - Didier Family Takes a Bite Out of NF2! 2017 - Effingham

Laura Didier

Dear friends and family,

Thank you for visiting our fundraising page!

Help us Take a BITE out of NF2!! Walk with Ali's Gaitors in this year's Great Steps 4NF - Effingham!

Ali’s Gaitors (Team #16) was created to help raise awareness about Neurofibromatosis Type II (NF2 for short) and to help fund and support NF research. My 20 year old daughter Ali was diagnosed with NF2 in 2007 and has had two brain surgeries, a spinal surgery and a surgery on her arm thus far, making her deaf in the right ear, taking her sense of smell and causing double vision. Two of the tumors have grown back requiring additional surgeries in the near future and the arm surgery could not take away the pain there without sacrificing function in her wrist so the tumor remains. 18 months ago, Ali experienced a severe hearing loss in her only hearing ear which makes every day at work and culinary school a struggle. Every MRI brings the threat of tumor growth or new tumor development. Ali has many ongoing concerns and future medical decisions to make; updates on her story can be found here: http://www.caringbridge.org/visit/alididier

Where do all these tumors come from?? NF2 is a rare neurological disorder that causes tumors to grow due to the lack of a protein that suppresses tumor growth. Though they are benign, people with NF2 can develop these tumors in the brain, spinal cord and throughout the body. As the tumors grow and press on the nerves, it can lead to deafness, balance issues, vision impairment, seizures, paralysis and sometimes life-threatening conditions. Currently, people with NF2 are faced with tough choices of surgical removal or radiation, both of which pose great risk as well as the possibility of re-growth, so we need to find a cure for NF2!

NF Midwest is the local regional non-profit that C.A.R.E.S. to help improve the lives of people with NF. By donating to my page, YOU are helping in this mission.

C- improve clinics

A- raise awareness

R- fund research

E- increase education

S- offer support

This year, the Didier Family will be participating in the 10th Annual Effingham Great Steps Walk as well as the Naperville walk, but this will be our only fundraising page.

How can you help?

1. Join our team for the walk and help to raise funds. Contact us if you are interested in this opportunity or click the Join Team button on the right side of our team page.

2. Donate on our page

3. Send a check to NF Midwest, 473 Dunham Rd., Suite 2, St. Charles, IL 60174 and in the memo add “Ali's Gaitors/Laura".

Many thanks in advance for your generosity! Please remember that no gift is too small. Every contribution gets us a little closer to our goal – FINDING A CURE! Please forward this to anyone who you think might want to donate, too! If you have any questions, please do not hesitate to contact us.

Together we can make a difference and improve the lives of children and adults with this devastating disorder!

Sincerely,

Laura

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$1,360
raised of $100 goal
 

Recent Donations

$20.00
1. Robert Worman
$40.00
2.
$100.00
3. Mary Deters
$200.00
4. Laura Didier
$500.00
5. Marilyn Woodruff
$500.00
6. Maurice's
Captain of

Team Ali's Gaitors

$1,480
$1,000