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Welcome to Caitlin's Promise!

Caitlin's Promise

Caitlin's Promise

Thank you for visiting and checking out a cause that is very important to me. I appreciate all the support I can get!

Caitlin Shea Ostrom was my beautiful first born daughter! She was diagnosed with Neurofibromatosis when she was just 3 months old after a very difficult birth and early months. She endured so very much with this disease over the course of her very short 20 years of life including many surgeries and a leg amputation. In late August 2013 we received the news that one of the many fibromas in her abdomen had turned malignant and Caitlin lost her life in November of that same year after enduring lots of pain.

I promised Caitlin that she would Never be Forgotten and this walk is one way we have tried to keep her memory alive and do good for others that have NF. Please help us keep our Promise to Caitlin. Join us or donate to the team so she may be remembered!

Neurofibromatosis (NF) is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time, plus a huge array of other complications! It’s a progressive disorder that affects all races and both sexes equally. Currently there is no cure or effective treatment.

We have formed a team for a the Great Steps 4NF Naperville Walk on June 01, 2019 to raise awareness and funds to improve care.

How can you help?

1. Join our team for the walk and help to raise funds. Contact us if you are interested in this opportunity or click the Join Team button on the right side of our team page.

2. Donate on our page

3. Send a check to NF Midwest), 473 Dunham Rd., Suite 3, St. Charles, IL 60174 and in the memo add “Caitlin's Promise/Christine".

Many thanks in advance for your generosity! Please remember that no gift is too small. Every contribution gets us a little closer to our goal – FINDING A CURE! If you have any questions, please do not hesitate to contact us.

Together we can make a difference and improve the lives of children and adults with this devastating disorder!



Christine Christensen
  • David Christensen
  • Taylor Westhaus
  • Aiden Christensen
  • Nancy Hunt
  • Kristen Melchiori
Jeanette Dentro
  • Lin Dentro
Becky Koo
  • Morgan Koo
Garrett Fleishman
  • Christy McCollum
Nina Minnear
  • Erich Minnear
  • Brody Minnear
  • Cole Minnear
Peter Rzeminski
  • Michelle Rzeminski
  • Tyler Rzeminski
  • Ryan Rzeminski
Lauren Deutsch
  • Kathy Kujawa


raised of $5,000 goal

42 Fundraisers

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Recent Donations

1. Anonymous
2. Anonymous
3. Nancy Hunt
4. Amber Leitner
For Caitlin ❤️
5. Rosa Phipps
6. Tim Walter