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Welcome to My Page 4NF

Pete Howard

Pete Howard

Thank you for visiting and checking out a cause that is very important to me. I appreciate all the support I can get!

Neurofibromatosis (NF) is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time, plus a huge array of other complications! It’s a progressive disorder that affects all races and both sexes equally. Currently there is no cure or effective treatment.

We’re very excited about the opportunity to raise funds because we want to support a foundation that is close to the heart. We have formed a team for a the Great Steps 4NF Naperville Walk on June 02, 2018 to raise awareness and funds to improve care.

Levi was diagnosed with NF1 in March of 2017. Levi's story is very long about how exactly He was diagnosed. If you want to read about it we attached a google doc that you can read. Levi currently has about 10 Neurofibromas and he also have a pee sized tumor on his brain stem. He has to go to Lurie Childrens Hospital every 6 months to see specialists and have an MRI. There are many side effects of NF but Levi is amazing young boy who has a special presence about him. We don't always understand why God allows things to happen, but we are trusting in Him to get us all through this NF journey.


We have an amazing support group and extremely grateful for all of our friends and family.

How can you help?

1. Join our team for the walk and help to raise funds. Contact us if you are interested in this opportunity or click the Join Team button on the right side of our team page.

2. Donate on our page

3. Send a check to NF Midwest), 473 Dunham Rd., Suite 3, St. Charles, IL 60174 and in the memo add “Team Levi/Pete".

Many thanks in advance for your generosity! Please remember that no gift is too small. Every contribution gets us a little closer to our goal – FINDING A CURE! If you have any questions, please do not hesitate to contact us.

Together we can make a difference and improve the lives of children and adults with this devastating disorder!


Here is the google doc about our story: https://goo.gl/3Ym2XJ

Sincerely,

Pete, Megan, Landon, Lydia and Levi

Comments

$2,845
raised of $3,500 goal
 

Recent Donations

$25.00
1. Stefani White
$25.00
2. Daniel Mercer
$20.00
3. Betty Hundley
$100.00
4. Jack and Norma Blount
5. Laura Valentine
You go Levi!
$25.00
6. Jared Reardon
Great cause for a great family.
Captain

Team Levi

$6,295
$7,500